The Misunderstood Child
I am the child that looks healthy and fine.
I was born with ten fingers and toes.
But something is different, somewhere in my mind,
And what it is, nobody knows.
I am the child that struggles in school,
Though they say that I am perfectly smart.
They tell me I'm lazy - can learn if I try.
But I don't seem to know where to start.
I am the child that won't wear the clothes
Which hurt me or bother my feet.
I dread sudden noises, can't handle most smells,
And tastes - there are few foods that I'll eat.
I am the child that can't catch the ball
And runs with an awkward gait.
I am the one chosen last on the team
And I cringe as I stand there and wait
I am the child with whom no one will play
The one that gets bullied and teased.
I try to fit in and I want to be liked,
But nothing I do seems to please.
I am the child that tantrums and freaks
Over things that seem petty and trite.
You'll never know how I panic inside,
When I'm lost in my anger and fright
.I am the child that fidgets and squirms
Though I'm told to sit still and be good.
Do you think that I choose to be out of control?
Don't you now that I would if I could?
I am the child with the broken heart
Though I act like I don't really care.
Perhaps there's a reason God made me this way
Some message he sent me to share.
For I am the child that needs to be loved
And accepted and valued too.
I am the child that is misunderstood.
I am different - but look just like you.
The boy on the playground
There's a boy on the playground
see him over there?
He's watching all the children
and wishing he could share.
There's a girl sitting on the monkey bars
can you see her lonely face?
She turns so you wont see her tears
when she feels so out of place.
These children are the lonely ones
the ones that don't fit in.
They try each day to find a friend
someone to believe in them.
On every crowded playground
in schools throughout the land.
There are children who are lonely
who struggle to understand.
So when you put your child to bed
tonight when darkness comes.
Ask them to whisper a little prayer
to remember the forgotten ones.
So when tomorrow, they see my son
trying hard to know what to say,
they may remember the prayer they said,
and invite him to come and play.
They looked at me with compassion
I hadn't a clue why,
Then they told me my son was challenged
and I began to cry.
"Your son may be Autistic, or
have some related disease."
"I've never heard of it," I said,
"Explain it to me please?"
"It occurs one in every five hundred births,
four times more often in boys.
Families of all racial and ethnic backgrounds
Regardless of stature or poise."
"Its a Lifelong neurological impairment
That affects the ability to speak,
Play or socially interact."
I felt my knees grow weak.
My husband took me in his arms
We held each other tight,
My five year old beside me asking,
"Mommy, is Stevie all right?"
We wouldn't have known there was a problem
If not for his speech delay
We thought he was just a little shy,
and preferred solitary play.
When she said, they don't know what causes it
I just wanted to die.
" My God, this isn't happening,
They can't even tell us why?"
"God is not sleeping," I said to myself
over and over again
holding fast to my faith in God
to help me endure the pain.
Clearly there needs to be research
It’s imperative we find a way
Of getting the programs funded,
If we're ever to gain some headway.`
Our children are so precious
They look to us for care
Let's show them how much we love them,
and make everyone aware.
L. Q. Demos
Copyright 2000
WELCOME TO HOLLAND
by
Emily Perl Kingsley.
c1987 by Emily Perl Kingsley. All rights reserved I am often asked to describe the experience of raising a child with a disability - to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It's like this......
When you're going to have a baby, it's like planning a fabulous vacation trip - to Italy. You buy a bunch of guide books and make your wonderful plans. The Coliseum. The Michelangelo David. The gondolas in Venice. You may learn some handy phrases in Italian. It's all very exciting.
After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later, the plane lands. The stewardess comes in and says, "Welcome to Holland."
"Holland?!?" you say. "What do you mean Holland?? I signed up for Italy! I'm supposed to be in Italy. All my life I've dreamed of going to Italy."
But there's been a change in the flight plan. They've landed in Holland and there you must stay.
The important thing is that they haven't taken you to a horrible, disgusting, filthy place, full of pestilence, famine and disease. It's just a different place.
So you must go out and buy new guide books. And you must learn a whole new language. And you will meet a whole new group of people you would never have met.
It's just a different place. It's slower-paced than Italy, less flashy than Italy. But after you've been there for a while and you catch your breath, you look around.... and you begin to notice that Holland has windmills....and Holland has tulips. Holland even has Rembrandts.
But everyone you know is busy coming and going from Italy... and they're all bragging about what a wonderful time they had there. And for the rest of your life, you will say "Yes, that's where I was supposed to go. That's what I had planned."
And the pain of that will never, ever, ever, ever go away... because the loss of that dream is a very very significant loss.
But... if you spend your life mourning the fact that you didn't get to Italy, you may never be free to enjoy the very special, the very lovely things ... about Holland.
Rewriting History for Their Own Ends: Cure Autism Now and The Mind Tree
Kiss with eyes they do
I see it all the time
God I envy people
Kissing with eyes
The love flows like
Stars like brilliant
Stars
So really loving how
I love to kiss with eyes1
The above poem was penned by a young autistic man, and published in a book of poems and stories. His mother, with some help, taught him to write. He could not speak, was presumed by many not to think, and had a good sense of humor and grasp of metaphor. He was the first person in this position to write a book in English. He told people things they had not known before about autism. One professor said, "In the poems he is talking about relationships, and shows an awareness of society and his place in it. He's aware of his own condition and of other people and how they react to him. Being able to reflect on that is something people didn't realize that autistic people did."1
The Yellow Kite
The other day
I saw a yellow kite
it was so beautiful
flying free, against
an electric blue
sky.
I thought of my
little child,
and realized
he is just like that
yellow kite
He is the kite
flying free
colorful, unique
beautiful.
I like to think
that the string
is the love
between us.
I stand and watch
him, as he soars
I pull him back
when danger
threatens
to topple him.
I give more of
the string, when he
needs it,
allowing him to
test the skies
and fly on his own.
But I love him
enough,
to reel him in
when he is
out of control
when his fears
and his tears,
send him in a
tailspin.
I pull the string gently,
I must not break
the string,
for if I let it go
my beautiful yellow
kite will be alone
and he is not ready.
Some days there
is not enough wind
for my kite to fly.
On those days, when
life is just too windy
or even too calm.
I fold him up carefully
in my arms,
hold him close,
until the time is
right to let
him fly free once more.
c.
Sally Meyer 2000